Each church will have a unique approach to gathering a care team to support a family in need. In some cases, life groups or community groups will “adopt” a family. Other churches may already have an existing care ministry that can assemble a team. If your church already has teams in place to deliver meals or provide rides, consider coordinating support with them. The information gathered from the point person will help determine the size of the support team and if members need specific skills.

Sometimes, the best “disability ministry” isn’t done on Sunday at church, but in the home of a family living with disability.
When a baby is born, an unexpected illness strikes, or a death in the family occurs, churches are good about providing meals, helping with household chores, and providing emotional support. But caring for a person with a disability is not a single moment in time! There is not always a crisis point that clearly calls for a response. The support needs of a family affected by disability are usually invisible to those looking from the outside, causing families to feel isolated and overwhelmed.
It can be very difficult for families to ask for help when there is nothing in particular, but everything in general, that is causing stress or stretching margins. Asking a family to figure out one or two things that would be helpful adds even more stress. “Let me know if there’s anything we can do” is therefore unlikely to get a response. For more insight into these needs read, How to Support a Family Living with Disability as a Church.
So how do we proactively offer specific, practical help? By following these six steps.
Step 1: Appoint a Point Person
Choose someone the family trusts to be the primary point of communication with the family. Sharing needs and asking for help is an intimate thing for many people. Having a single trusted person the family can talk to streamlines communication and avoids confusion.
A point person can often recognize needs that the family may not see, express, or believe are worth mentioning.
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No particular background or skillset is needed for respite volunteers. This realization can offset stress and place the emphasis where it belongs: the chance to love people well in the name of Jesus.

Did you know families living with disability consistently name respite care as their top unmet need?
A recent Joni and Friends survey identified respite care as the top unmet need among families living with disability. Many parents and caregivers who lack respite care options have to just keep going despite exhaustion, isolation, and discouragement. Disability advocate Jennifer Evans joins the podcast to talk about the gift of respite—how providing this type of rest can enable families to experience the love and grace of Jesus Christ.
What is respite care?
An estimated forty-four million American adults serve as unpaid, informal family caregivers. Among caregivers, isolation, chronic stress, and depression run high, as responsibilities continue relentlessly.
Some families have expressed that the demands of raising a child with a disability can be overwhelming and all-consuming. And many marriages struggle under the strain of caregiving.
Respite care is essential for families navigating disability to thrive. From simple home visits to overnight programs, all forms of respite care share a common goal—to give parents and other caregivers a break. Depending on a family’s specific needs, respite care can take many forms. For example:

Babysitting
Home visits
Playdates
Structured events

How can respite care build relationships?
Beyond offering parents and other caregivers a break, Jennifer shared that respite care gives children and adults with disabilities the chance to build new friendships. Parents in need of respite can connect with one another; and often volunteer respite caregivers form relationships with the families they serve.
So often people with disabilities are isolated at home, only with their parent or caregiver.—Jennifer
At respite events, people with disabilities can build friendships with peers and volunteers. Community and connection can naturally arise from respite care events and ministries. For families who feel isolated, this experience of belonging can make all the difference.
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